Saturday, March 2, 2013

The past six months in pictures (Winter).

WOW! I included all these pictures because they can explain better what a fun and busy Holiday season we had.

Sawyer helped me put the tree up after Thanksgiving. He had his own two ornaments at the bottom that he claimed and would constantly play with.

Ramen noodles and Mac n/ cheese were the two foods he consistently ate. The "gateway" foods, we decided. Which was perfect timing, since Christmas is synonymous with "junk food" everywhere we go. Rice Krispies were no exception...he loved those and pretty much everything that was too sweet, too fat, too rich, too decadent, etc. Couldn't quit bolus feeds quite yet- he needed SOME nutrients, though he was finally eating and getting ample calories.

So, in the meantime, Sawyer had  a few dilations on his esophagus to help keep it open so food could easily be swallowed. It'd work for the first two weeks, then slowly the strictures would start to tighten and we'd have a mess after everything he attempted to eat. The surgeon (Dr. Scaife) proposed inserting a stent temporarily in his esophagus to see if that would slowly help it to relax and open wider. So the day after Christmas we tried the stent without really knowing what to expect in the weeks following.

He must have picked up something between the hospital and home because the following 4 days were a nightmare. He couldn't eat, he didn't have an appetite, he was weak and fatigued, and he hadn't pooped or peed very much. We were certain is was the flu and he hadn't yet had the flu shot. So we nursed him as much as we could, and calmed him when he wailed during the night (assuming he was in pain), and finally I called the Pediatrician on a Sunday morning, ready to admit Sawyer to the ER, and luckily she prescribed him dis solvable Zofran. That very day he kept down broth and pedialyte (through his g-tube), and then the next day he could have higher volumes without throwing it all up. What a relief. But what a serious nightmare. And then a few days after that, he got the same cold that was going around the family and neighborhood. There was NO BREAK! So, for about the first month, Sawyer hardly took any food orally. We finally decided to quarantine him completely so he could get his health back completely. We wanted the stent out pronto! 6 weeks was too long, but we had done the time and were ready to get it out. AND then, he got sick again. We took him out to Home Depot for the first time in days. He of course licked the handle of the cart, and the next day was sicker than a dog. UGHH. So we had to push the stent removal back a week. So he went a total of 7 weeks with a stent. Which means, for 7 weeks he was either miserable because of the stent or because he was sick. I'm just glad I didn't have to endure that alone. Finally, on February 11th, Dr. Scaife took the stent out and raved about how great his esophagus looked!! He said it was huge, and the stent did its job in stretching his esophagus out. We're going back in  a week for an esophagram to see if he's progressed, regressed, or stayed the same. But as far as eating, Sawyer has made massive leaps of improvement. He's eaten everything but the kitchen sink at this point. It's been quite the journey, and we're not totally off tube feedings (yet), but I imagine that either by summer or fall, we'll be really close. For now, Sawyer is making up for lost time (and lost calories) by eating every opportunity (especially whatever mommy is eating. Sure to be delicious :)

I forgot to mention how wonderful Christmas was. He got a lot of cars and trucks this year. Brobee from Yo Gabba Gabba was a huge hit. He took it with him to the hospital the next day for his stent and it got a lot of attention, since it was the same size as him. He is now a master Magna doodle-er. We spend most of our days drawing trucks and snowmen, over and over and over and over and ............. again, obsessive tendencies, but it's harmless and I have needed to brush up on my doodling skills anyways.

Next major life event: Turning Two!! Stay tuned. Pictures to follow.

The past six months in pictures (Fall)

I got a little behind with blogging.

I discovered Instagram last August when we went to Virginia to visit Taylor (did that really happen?!) when he was completing training as a Navy reservist. And truthfully, Instagram is way more convenient than facebook AND blogging, so I hope I can be forgiven for neglecting my blogging duties.

Last September, Daddy came home from Virginia. Yay! Sawyer became a new little boy as soon as we were all together again. I'm so thankful he was too young to understand time/distance, and that when Taylor held him for the first time, he warmed right up. It was a smooth transition, and I'm so glad it's done and over with.

Taylor jumped right in and helped Sawyer with eating. Taylor must have a secret effect on Sawyer's taste buds because suddenly food was interesting and safe. Sawyer started to eat here and there, and it was less of a chore.

He also started talking right when Taylor got home. With October approaching, suddenly pumpkins were the topic of all of Sawyer's conversations. He LOVED pumpkins. I think he loved that he could communicate what they were (popo). And they were everywhere we went, every show on TV, and all day long he would excitedly point and repeat a million times "popo!!" Cute, but Christmas couldn't have come sooner.

He also is incredibly obsessed with cars and trucks. Anything with wheels. So one of the first things we did when Taylor got home was purchase a Little Tykes buggy/car. He spent a week sitting in it. He ate his food in there, he pooped his pants in there. It was his little hub. It became evident that he is easily fascinated and easily obsessive. His little personality really started to come out and I began to realize what a smart, persistent, opinionated individual he is. The trick is to make it work in my favor when it comes to eating, talking, and surviving terrible two's.

Saturday, September 1, 2012

I found my camera

First and foremost, two cute videos. Second, yes we are still alive. This summer has gone by and I haven't posted many pictures of our adventures. Mid-July, Sawyer's cousins from Yakima came down to visit. We visited the zoo in IF. It rained, no downpoured, so we had to hang out under a tent for twenty minutes. I let Sawyer explore the puddles because it made him so happy.

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I told him to "SMILE!" and this was the result.

Two weeks ago we packed up and flew out to Virginia Beach. It was an awesome break-exactly what I needed. The plane rides were a ton better than our Chicago trip. Unfortunately, pictures are being impossible to upload at the moment. When I can find what folder they're in, I'll post pictures of Sawyer playing at the beach, which he loved.

Friday, July 6, 2012


Oh my gosh.
Ignore my barking, but I had to share this video with the world wide web.

For the 4th of July, we started bright and early at the parade in old town.

Towards the end, we couldn't stand the sun for one more second. I dumped water on Sawyer's head and he happily sat there as the parade finished up

This is the house from Extreme Makeover Home Edition.

After BBQ at the parent's, we came home and set up camp in the front yard.

It was a great 4th of July this year. I'm so grateful to be where I am and enjoy the freedoms I have. Now, if it would just RAIN.